What next?

I'm waiting for my next follow up with my gynae consultant on 1st May.  I'm feeling pretty rubbish at the moment, and can't help but think 'What next?' What's the next thing to try, the next thing to mess around with my body, and cause havoc.


During my 3rd lap...Actually, I think I've only mentioned my 2 most recent laps here, so just to fill you in, the first one was in an NHS hospital, under a gynae consultant with no specialism in Endo. He couldn't find anything, so packed me off home where I waited another 2 years to be taken seriously again. 


So, during my 3rd lap, I had the Mirena coil inserted. I'd heard mixed reviews, but it seemed as though it could be really beneficial in both stopping periods and helping to prevent the Endo coming back. I hoped that this could be the case for me, but does anything ever go how you want it to? I spent the next 7 weeks in increasingly agonising pain, with everyone telling me it was just 'growing pains' because my uterus had been underdeveloped. I later found out that my uterus had been rejecting the coil, spasming in a sort of 'mini labour' for weeks on end. When I finally got it removed, it was partway down my cervical canal. 


That really, really annoys me. The fact that I was in so much pain, and I knew something was wrong, but no one would help me. Don't I know my own body better than anyone? Don't I know what level of pain is acceptable? I very much appreciate all the hard work the gynae surgeons/ consultants/ nurses do, and I know most of them have an awful lot of experience in helping women through this, but really, does this qualify them to tell me that they know my body better than I do?


So here we are again. 2 days after I had the coil removed I started bleeding. I was expecting to have a very painful first period after the coil, but nothing could have prepared me for the days that followed. I spent 3 days rolling around, literally rolling around in pain on a cocktail of strong Co-Codamol, Tramadol, Diclofenac & Buscopan, supplemented with as many hot water bottles as I could get my hands on. Adam was at work for those 3 days, and each lunch break, he rushed home to change my hot water bottles, make sure I ate something and took my painkillers. The 4th day, I couldn't bear it any longer, and we were advised to go into A&E. We got a taxi there, and the taxi driver clearly thought I was in labour. As we got to the hospital, he said pretty nervously, 'Straight to Maternity, is it?' I would have laughed, if I weren't already moaning in so much pain. 


I have to say, the A&E nurses and doctors were fantastic. Within 2 minutes, I'd been assessed by the triage nurse, and was on a bed, in a gown, being given a morphine injection. They transferred me to a ward later that day, and until I stopped bleeding and having pain, they just dosed me up with morphine every 2 hours.


Now, 2 weeks later, I'm having a similar kind of pain- although not as severe, that I can only assume must be me ovulating. By no means at all, do I have a low pain threshold, but there is no way that I can put up with this kind of pain every 2 weeks, as well as the usual constant pain. So what next? 


What are the options? Well, I'll have to wait until 1st May to find that out. But I am sick and tired, sick and tired, sick and tired of having things mess with my body and my hormones. I'm sure many of my fellow Endo ladies feel the same, and I really, really hope we manage to find a decent treatment sometime soon. For the sake of me, and every other woman out there.